Trigeminal Neuralgia-living and leaving. My story

Trigeminal Neuralgia-living and leaving. My story.

In this story, the patient describes how he had severe pain, how he was resigned to accepting his fate, living with the pain, and how MVD surgery was a life-changing experience for him.

Why a Trigeminal Neuralgia specialist?

Trigeminal Neuralgia treatment in India is well established, especially for medical management. There are a few neurosurgeons who perform MVD surgery for treatment of trigeminal neuralgia; Dr Jaydev Panchwagh is a trigeminal neuralgia specialist doctor who is Director of the centre of excellence for MVD surgery. He has an experience of more than 1400 MVD surgeries in the last 20 years.

Trigeminal neuralgia attack and its treatment

Trigeminal Neuralgia attack and its treatment

Trigeminal Neuralgia attack can be very severe and frequent as the disease progresses, and its treatment at that point in time may be very frustrating. It is when such attacks become frequent that the patient generally tend to take decisions about getting MVD surgery done. In this video, a patient shares her experience during one such attack and how she suffered through it. She also describes how her life changed for the better after she became pain-free after MVD surgery. Dr Jaydev Panchwagh, an eminent neurosurgeon and an internationally acclaimed one performed this Microvascular Decompression (MVD) surgery on her. Having performed more than 1350 MVD surgeries, at his MVD centre in Pune, India, he has a considerable experience in treating Trigeminal Neuralgia. The MVD centre also caters to international patients and has a support group.

Is Trigeminal Neuralgia serious?

The honest answer is yes and no. By itself it does not harm life, (except in cases of C-P angle Tumor) but the disease itself can be so debilitating, and its medical treatment so very challenging, that the patient often considers ending their life because of the pain and the fear of an upcoming TN attack. Click here to read more about the disease.

Trigeminal Neuralgia (Facial Pain) diagnosis

Electric shock-like pain in any or all of the three divisions of the trigeminal nerve brought about by trigger factors usually establishes the diagnosis of trigeminal neuralgia.

Trigeminal neuralgia causes

The pain of trigeminal neuralgia is usually caused by one or more blood vessel compression on the trigeminal nerve or a C-P angle tumor (Cerebellopontine angle tumor). There can of course be other causes. Click here to know more.

 

Trigeminal Neuralgia attack

The pain in Trigeminal neuralgia manifests as attacks of facial pain generally brought about by trigger factors like talking, brushing teeth, eating etc. The patients experience electric-shock like pain during the trigeminal neuralgia attack. The pain may have different manifestations in different people. click here to know more about Trigeminal neuralgia symptoms.

Trigeminal neuralgia treatment

Though there are many options for treatment of Trigeminal neuralgia including medications, Radiofrequency lesioning (RFLG) etc, Microvascular decompression surgery is the only shot at achieving a possible permanent cure.

Treatment for Trigeminal Neuralgia by MVD surgery

Treatment for Trigeminal Neuralgia by MVD Surgery is a well-established option. MVD stands for Micro Vascular Decompression. This means that a microscope (with or without an endoscope) is used to decompress the Trigeminal Nerve from one or more blood vessels compressing it. The Micro Vascular Decompression is most often done using one or pieces of Teflon sponge.

Trigeminal Neuralgia Treatment by MVD surgery- a patient’s story in Hindi

This is a video testimonial of a patient who came to our MVD Centre from the United Kingdom for treatment of his Trigeminal neuralgia. He talks about the trigger factors that started his facial pain. He also talks about how he is pain free after MVD surgery. Please click here for other video testimonials.

If you want to watch MVD surgery and how it is done, please click here. You can go to our Home page to get all information about Trigeminal neuralgia.

Initially he faced facial numbness, but that gradually went away with time.

Dr Jaydev Panchwagh is an internationally acclaimed neurosurgeon who operates at the MVD Centre in Pune. He and his team have an experience of more than twenty years in dealing with patients of Trigeminal Neuralgia. There is a good support system in place for international patients as well. The centre also has a support group for Trigeminal neuralgia patients.

Microvascular decompression for TN

Microvascular decompression for TN is a potentially curative surgery and can be a permanent solution.

In this video on treatment of Trigeminal neuralgia with Microvascular decompression surgery, a patient shares his experience 2 years later. Many questions like What is the main cause of Trigeminal neuralgia? and what is the best treatment of trigeminal neuralgia are answered. Do watch the entire video for all the answers.

He says “The pain of Trigeminal neuralgia was severe enough to contemplate suicide. It started suddenly, without warning, electric shock-like. And when I got the TN attacks, people around me would wonder what happened to me so suddenly? Medical treatment made me have memory loss and loss of balance. And it also made me very drowsy and numb. The medicines stopped having effect on my pain later on. Only the side-effects persisted because I was increasing my doses to get pain relief from my facial pain attacks.”

MVD surgery for Trigeminal neuralgia

Microvascular Decompression for TN is one of the many procedures that can be done to cure the pain of Trigeminal Neuralgia. However, this is the only possibly permanent treatment. The highest rate of success is in experienced hands. In this surgery a teflon piece is inserted between the blood vessel(s) and nerve to prevent compression.

You can listen to other patient experiences here:

 

Dr Jaydev Panchwagh is the founder-Director of the MVD Centre in Pune. He is a well-established neurosurgeon of national and international repute. He is also founder-member of Synapse brain and Spine Foundation.

Pain relief after MVD operation

Pain relief after MVD operation: How long does it last?

It is generally permanent or at least very long-lasting.

Here is the experience through a video testimonial of two patients who underwent Microvascular Decompression surgery or MVD operation in 2017. This video was recorded 3 years after their surgery.

What are the aims of MVD operation?

Pain relief is the primary aim after MVD operation. Reducing or complete cessation of medication is a secondary benefit.

What kind of pain relief may be expected after MVD operation?

The pain of Trigeminal neuralgia is generally electric-shock like and is episodic, brought on by trigger factors. The relief after a successful MVD operation is immediate, and complete.

This means that the patient will  now not experience any trigger factors.  He/she is able to eat, talk, brush teeth, wipe face, shave, apply make-up etc. without experiencing facial pain. Sometimes after MVD surgery, there may be a temporary facial numbness as the trigeminal nerve is healing itself from the pre-operative short-circuiting.

What are some of the FAQs regarding Trigeminal neuralgia or MVD operation?

There are plenty of questions and you will find the answers here.

Who performs the MVD operation at the MVD Centre, Pune?

Dr Jaydev Panchwagh is the neurosurgeon (brain surgeon) who performs all MVD operations in the MVD Centre in Pune.

A single-surgeon experience of more than 1380 surgeries is phenomenal, considering that this disease is not very common.

Where can I read more about other patient experiences at the MVD Centre in Pune?

There is a support group, which you can get in touch with if you contact us. We can link you up with other patients or share their testimonials.

Where is Pune?

Pune is a big, thriving city about 100 kilometers from Mumbai. It is well-connected by airports and trains. It has multi cuisine restaurants, and is very cosmopolitan.

There are plenty of international students in Pune, which is also considered an educational hub in India. International medical tourism is also popular in this city.

 

 

 

Trigeminal Neuralgia Pain Relief

‘Trigeminal Neuralgia Pain Relief has been the single-most wonderful thing in the last month of my life!! The pain was so bad before the operation, I could not eat, sleep or drink, even talk. And then I underwent Microvascular Decompression surgery or MVD surgery.

Now that my pain is relieved, I feel like laughing, dancing, singing…..I am so ecstatic. I feel that no patient should needlessly suffer the pain.

For me, the Trigeminal Neuralgia Pain relief was so immediate, that I would highly recommend it to all other sufferers. I had visited many doctors, many neurologists, many experts, not only in Mumbai but also other cities and states. But I did not get the confidence that I could be treated well.

Dr Jaydev Panchwagh is an expert in treatment of Trigeminal neuralgia. He is a neurosurgeon based out of Pune. He has an entire team working with him for the last twenty years, that each one on the team has a big role to play in the recovery of the patient.

I have been supported so well during this incredible journey of Trigeminal neuralgia pain relief that I would highly recommend anyone to please visit him at least once.

I too was afraid of surgery before, but after listening to other peoples experiences and reading their testimonials, and talking to them, watching his Youtube videos, I became confident”.

 

Successful MVD for Trigeminal Neuralgia

Mrs R R underwent a successful MVD Surgery with Dr Jaydev Panchwagh for her facial pain/ Trigeminal Neuralgia. She is a resident of Mumbai , and after extensive research, decided to get operated at the MVD centre in Pune under Dr Jaydev Panchwagh.

This is what her daughter posted as a google review:

” My mother underwent successful MVD for Trigeminal Neuralgia. Indeed the most treasured of the doctors we have been privileged to meet is Dr Jaydev Panchwagh. The surgery was undoubtedly successful. Thank u for good care and concern.

Dr Jaydev Panchwagh put us at ease and helped in gaining the confidence. Because of you my mom is doing very well.

“You are truly a remarkable doctor and professional we respect and trust” and also a great thank you to Savita mam and Dr Santosh for clearing every small doubts whenever in need”.

Microvascular decompression is a good choice for finding permanent and long-lasting relief from Trigeminal neuralgia.   If you want to read more testimonials of patients who have undergone MVD surgery at our MVD centre, please click here. Dr Jaydev Panchwagh is the chief neurosurgeon at the MVD centre in Pune. He is also the founder-Director of Synapse Brain and Spine Foundation.

Dr Jaydev Panchwagh Neurosurgeon

Trigeminal neuralgia cured

Trigeminal neuralgia cured by Microvascular Decompression surgery is not unique. However, very few patients actually acknowledge this in public and help spread awareness.

In this interview, Mrs. Deshmukh and her husband share their experiences before and after her Trigeminal neuralgia was treated by Microvascular decompression surgery, or MVD surgery.

Mr Deshmukh also describes how he and his family suffered because they saw her in pain but could not share her neuralgic pain. They would take her to the hospital at all hours of the day when the attacks got particularly bad to give her intravenous pain killers. They endured all this simply because they were unaware of MVD surgery for Trigeminal neuralgia pain relief. Trigeminal neuralgia cured by MVD surgery is a boon for not only the patient but also the family involved.

While googling for trigeminal neuralgia treatment, her son chanced upon a YouTube video that Dr. Jaydev Panchwagh, a neurosurgeon in Pune had uploaded for public education. She then procured his phone number and contacted him. The very first meeting with him and his team gave her enough confidence to opt for surgery. She also spoke to a few other people who were operated upon by Dr. Jaydev Panchwagh,  who reassured her that he was the best neurosurgeon for MVD surgery done for treatment of Trigeminal neuralgia.

The cause for Trigeminal neuralgia is often a blood vessel compressing on the Trigeminal nerve. You can read more by clicking here.

Severe Trigeminal Neuralgia caused by Epidermoid tumour

CP angle Epidermoid Tumor
MRI of C-P Angle Epidermoid Tumor

Severe Trigeminal Neuralgia can occasionally be caused by tumors in the cerebello-pontine region, notably, Epidermoid tumors, Schwannomas and rarely others like meningioma etc.

Severe TN caused by C-P angle Epidermoid tumor

This is the story of a patient named Mr. Gopal Shinde, a young man from rural Maharashtra who suffered from very severe pain in the cheek and forehead. His TN pain was so severe that he could neither eat nor talk, nor open his mouth.

An MRI advised by us revealed a cerebello-pontine (C-P) angle tumor which was likely to be an epidermoid. Unfortunately, a nation-wide lockdown was imposed a few days after his diagnosis, and he had to return to his village.

Eventually, in spite of the Covid-19 situation, he came back to us for excision of the epidermoid, because the pain was unbearable. This was successfully removed in October 2020. His severe Trigeminal neuralgia pain disappeared immediately after surgery and he could begin eating, talking and smiling normally.

 

Dr. Jaydev Panchwagh operated on him and he was cured of his TN pain, with the excision of the Epidermoid tumor and with the freeing of the Trigeminal nerve.